Kate passionately campaigns to stop clinical misdiagnosis of the early onset signs of young stroke in A & E, Emergency Rooms globally. She fundamentally believes, from her own personal experience and that of 100’s of other brainstem stroke survivors globally, that most younger stroke survivor are in fact initially misdiagnosed. They are often turned away from A & E with ‘a migraine’ or ‘stress’ or ‘vertigo’ or and then re-admitted with far worse life threatening symptons, a poor prognosis & hugely costly treatment &/or rehabilitation costs.
Please email me if you are interested in helping me do this?
If a stroke in the brain stem results from a clot, the faster blood flow can be restored in this critical area, the better the chances for recovery. “It is important that the public and healthcare professionals know all of the symptoms of a stroke and are aware that some brain stem strokes heave distinct symptom,” Dr. Bernstein says. “Patients need to receive treatment as soon as possible to promote the best recovery.”
EXISTING RESEARCH …..
Kate pioneered and is a co-collaborator with Dr Joanna Fletcher-Smith on the @ESCAPS feasibility research with The University of Nottingham, Keele University & Southampton University. (And all from one opportunistic tweet to Joanna!) Please read this BMJ article on @ESCAPS _study.
She is also a collaborator on the Peer Mentoring research withThe University of Nottingham.
We are developing and testing the feasibility of a peer coaching program where experienced stroke patients are trained to coach and mentor newly diagnosed stroke patients through the early phases of rehabilitation. This is an exploratory study where we will develop the program and set up the foundation for a larger quantitative study.
She would like to see a national database of incidences & outcomes of brainstem strokes in future. She knows much anecdotal information which needs backing up with evidence-based research.
If you think Kate can help you please email her
About Kate Allatt
At 39 years of age she suffered a very severe brainstem stroke and was diagnosed with “locked-in syndrome”, leaving her completely paralysed and unable to communicate. Against all odds and to doctors’ amazement, she managed to regain speech and mobility in less than a year. She simply refused to lower her expectations of outcome improvement.
Since then, Kate has been committed to help people in similar situations. She works with the medical community to try to develop innovations to transform the health outcomes similar stroke survivors. She founded and voluntarily ran her registered charity Fighting Strokes for five years.